Posted in Life

Two years on

On this day two years ago, I had my final radiotherapy treatment. I wrote about my final treatments and the effects on my body at that time, noting that it was “getting boring” and that I wasn’t going to write about it anymore.

That was true for then, but what I wasn’t to know then was that two years later there are still lingering after-effects. When writing about my experience of cancer, I was reluctant to call it a ‘journey’. It’s such a hackneyed phrase, but also one I didn’t want to think of as relevant to me. I didn’t want a cancer journey, I wanted it to be done/finished/over. I wanted to close the chapter on that short part of my life and move on.

But it isn’t over; the chapter isn’t closed. The journey, such as it is, continues.

Not in big, sweeping gestures or debilitating treatments but in subtle ways that slink in around the edges, catching me off-guard.

I drive to one of four annual check-ups (breast surgeon, medical oncologist, radio oncologist, mammogram/ultrasound) and fight the rising panic by calling my daughter Emma or my sister Debbie. Emma drove me to many of my treatments and then to work or to home afterwards and can visualise where I am and that familiarity adds to the comfort she provides. Debbie takes me through the 5-4-3-2-1 technique forcing my focus elsewhere, away from the panic.

I take a pill everyday to help ensure the cancer doesn’t return. I try my hardest to get the same brand each month, but if it’s unavailable and I have to take a different brand my joints begin to ache within a few days, my legs swell, I get dizzy, my vision worsens.

I mention it to my radio oncologist at my annual check-up in March. She says many of her patients have noted the same thing. I’m glad it’s not just me; I was beginning to think it was all in my mind. She examines me and is surprised by the amount of pain I experience at her touch. ‘Things often start to get better from the 2-year mark’ she tells me. I’m sure she told me that at the end of the first year too.

My mammogram and ultrasound results have been fine so far. I am doing well. There is no need to worry.

So they say.

And then I let myself think of this as a journey … I know the starting point, that moment when I felt the lump for the first time. The six weeks that felt like many more between then and getting a diagnosis. The surgery, the healing, the radiotherapy, the pills, the annual checks, the regular massages, the lingering, push-it-to-the-furtherest-corner-of-your-mind fear that pops out every now and then … if this is a journey, what’s the destination?

I think about that for a while and decide that wellness is the destination.

If this is a journey, I want it to be a hopeful one. One with a destination I can look forward to. One I don’t ever want to go on again, but one I can think back on and feel comfortable in how I lived it.

I don’t want to pretend it’s all sunshine and roses, but it’s also not a journey full of menace or foreboding.

It’s a journey to wellness.

I can live with that.

Posted in Life

Diary of a distancer: Week 53

One year and one week ago I started working from home.

It was new then. Novel. Needed. We were unsure how long the situation would last. Time slowed down and then sped up; March dragged, while it seemed we raced through April. Then the year tumbled into some sort of mud pool … there were moments of clarity, and then in the middle of the year the situation became dire. Life changed.

I started my working from home days with my computer on a trestle table in Mum’s/Deb’s/Emma’s room. It stayed that way for 12 months, before I decided I needed a proper set-up. It means I now have a proper desk, with space for my monitors, somewhere to hang my headphones, a place for my morning cuppa, a different place for my water bottle, and a place for photos of my grandkids. I also have a bookcase behind me which has been expertly styled by the very stylish Alison. She happened to pop in on the day the bookcase arrived and was gracious enough to lend her considerable talent to elegantly arranging the items I dragged out of cupboards for her to approve (or not, as the case may be). It provides a carefully curated background to my meetings and more importantly provides me with a beautiful place to work.

My office is now neat, stylish, and slowly filling up with indoor plants. I have a heater, music available, a printer should I require it and a window – a door no less, to the outside world. There’s a huge tree out there and on stormy days, I sit here watching the branches being flung about like countries in the time of corona.

An email drops into my inbox. My workpace announces it is a ‘located’ workplace. After a year of being told we would be able to continue to work from home should we choose, we now have a new term to add to our list of new terms we’ve collected in the previous 12 months, and are being encouraged to return to campus … to add to its vibrancy. I sit and think for a nanosecond and decide that sitting in a cold office with no natural light, no view of a tree being thrashed around in the wind, no music swirling around me, is not for me. I’m quite comfortably located where I am. I’ll let others, those who have been working from their bedrooms or dining room tables, wrangling children and dogs and cats during Zoom meetings, make up the 75% allowed back into workplaces.

Life has changed since this time last year when a number of state premiers announced statewide lockdowns would commence on Monday March 23. The Prime Minister then announced a national lockdown. Toilet paper became scarcer than hen’s teeth; pasta and flour were also hard to come by.

It seems, though, that it’s changed for some more than others – often depending on location. I was fortunate enough to go to Tasmania over the summer. I spent a month there, something I wouldn’t have thought possible in the depths of last year’s winter. It was fabulous to be in a place where the fear of COVID was kept in a small place in the back of my mind. Social distancing was a thing people paid attention to, checking-in to cafes was part of the experience, and hand sanitiser was readily available in all shops … but, these are part of what has been termed ‘COVID-normal’. There was a time when we didn’t have to go through security at airports – and it’s now normal. Some of these new behaviours might also become ‘normal’ and we won’t think twice about taking a mask with us wherever we go.

Although, that depends where you are. When I was in Tasmania over the summer, I didn’t think about taking a mask anywhere. As of today, March 14, 2021, Tasmania has remained COVID-free for 92 days. There was a ‘blip’ in December 2020, when four new cases were reported in Tasmania (from a family returning on a repatriation flight) but if you take those cases out of the equation, it really hasn’t had an outbreak since May last year. That’s really quite remarkable in a world overrun it seems by COVID.

Source: ABC News

Life has changed. The ebb and flow of 2020 saw various members of the family exercising together and then not. It saw some of us involved in photography projects and then not. It saw visits to family in other states planned and then cancelled. It saw low points and lower. It saw the spead of misinformation, daily press conferences by Daniel Andrews and a tide of people expressing disappointment, disgust, distress at much of the reporting emerging from those pressers. It saw less – less going out, less contact with others, less exploration – and for us, less television watching, less reading, less …

In my first blog post in the time of COVID, I wrote

It seems we’re in this for the long haul – a few months rather than days. Perhaps even longer. I’m sure we’ll work out how to live in this disrupted world, but it might take a while.

Has your world continued to be disrupted, and if so, have you worked out how to live in it?

I’m not entirely sure I have.